Just quick note to say all went well yesterday.
Got to Wycombe Hospital early at about 10:20 and left at 14:15 with everything done.
Very busy day but worthwhile as now everything is out of the way and done except surgery with Mr. Andrew McLaren.
Bit of a mix-up with the appointment to see surgeon which was 11:00 am which was right in the middle of the mibi injection and the first mibi scan. Got that sorted though and arranged to see Mr. Andrew McLaren in between the 2 hr wait between the first and second mibi scan.
So the whole thing went something like this:
10:40 Parathyroid ultrasound (5mins). Came back negative.
10:50 Mibi injection after they finally found a vein on back of the hand – it has to be said my veins aren’t the easiest to find.
11:05 First mibi scan – far too hot in the rest of the hospital but nice and cool in the scan room – drifted off into a daydream for most of it. They told me I could listen to my own CD but they lied! At least they didn’t offer and I wasn’t going to make a point of putting then through my musical tastes. (45min).
11:50 See the surgeon Mr. Andrew McLaren. We discussed my symptoms and he said they were typical of many patients and that others like my rheumatologist didn’t see enough patients to recognise the symptoms of Primary Hyperparathyroidism. And that they didn’t understand that blood calcium level doesn’t correlate with symptoms. He said he has a patients with blood calcium very high at 3.5 and me at 2.7 she has no symptoms and I’m in agony. Typical surgeon – they are a different breed from medics – less touchy feely and more gung ho, let’s get you under and get it out. When you have a parathyroid tumour the last person to help you is some wishy washy medic – you need a surgeon! I’ll be speaking to Mr. Andrew McLaren on Thursday to discuss the results of the mibi and a date for surgery. The ultrasound was negative but that doesn’t mean anything, in fact he’ll still go in with a negative scan as they do.
12:10 Had all the pre-op tests done except the voice box check which I’ll probably have on the table.
By the time I’d had the pre-op tests and filled out their questionnaire it was time to have some bloods taken then head back for the final mibi which took about 15 mins this time – quicker than I expected as I though both were 45 mins long. Maybe that was a good sign or perhaps that’s normal?
Quick call to my better half who had been trolling around the retail wonderland which is High Wycombe (not) for several hours managing to spend £80 in the process.
The whole thing was a bit whirlwind and to be honest I was away with the fairies for most of it as my pain was so bad I was chucking back Tramadol like Smarties.
Well that’s the worst of it out of the way.
Hope everyone’s all keeping well!