The Parathyroid Forum

[Freyahopefull]

Hej Rach,

Yes I agree it is worse than birthing pains because atleast while giving birth one has a goal to focus on; the baby on the way, but when it is kidney stones it all seems so useless to have such pain and no real pain relief I cannot wait to get my life back and be able to care for and play with my 2 year old who is so full of energy.

Take care,
Freya

[Rach]

Hey Freya! I also have a nearly 2 year old who is very active and on the go all day, and a 5 month old both of which get up very early! Like you I cant wait to have my energy back so I can keep up with them. I feel really guilty when Im feeling so unwell, like they're missing out on doing different activities because Im tired. Hope we both get sorted soon! Rach

[kathy]

I feel so sad for those of you that are so young and have to suffer with this. I'm in my early fifties, and at least could blame some of it on aging.

I asked my surgeon about the teeth thing - and she said it could contribute to bone loss in my gums - which I have.

[Prue]

Hey Rach and Freya,
I completely understand where you're coming from - I have a 2 year old and a 7 month old! It's so hard to keep up with them and I feel like Im not the best mum I could be. I hope that surgery has sorted me out, Ill wait and see and I hope you guys get better really soon too, big hugs to you both! xox

[Rach]

Thanks Prue! Its horrible isnt it? Its just been like one thing after the other with this disease, and to top it off Im having my gallbladder out on Tues, so another few days my boys have to go without me. It really makes me sad. Did you have hyperparathyroidism whilst pregnant? My 5 month old has very clicky arms, legs and back, every time I pick him up I hear his bones click. Im worried the high calcium I had when pregnant has affected him. However, it could just be because he's a bubba and his bones are still growing, and maybe Im worrying about this too much. I hope you're feeling better now after your surgery. Rach

[NancyMI]

Simon,
I had to chuckle to myself when you made your observations about surgeons expecially the one about " they don't do humor". So funny to me.

I have to admit, and I think it's due somewhat from the field I am in and some because of my basic nature, that I am more of a literal person.

I do appreciate a good comedian though and also other humor.

I just can't tell a joke to save my life.

Nancy

[Lizzy]

I get really dizzy and disorientated! I have become slower and clumsier over the last couple of years. I also get the skin itchiness and really bad depression. My self esteem is low and I think that usually everything that goes wrong in life is down to me! Welcome to paranoid parathyroid disease. Does anyone get chest and lung pains like a sharpe dagger going straight through them? I sometimes feel like I have Breathed in glass it's so painful. I'll stop moaning now. Hope everyone's well. Kind regards, Liz.

[Admin]

Hello Lizzy,

Yes, I used to get sharp pains in the chest and breathing problems.
The worst chest pains were in my breast bone when I sneezed it was agony. I also used to get a tender feeling in the lower rib cage like I'd been kicked in the ribs by a donkey.

Simon

[Dave]

Hello all
Anyone want to admit to anxiety as a symptom of this disease? Anxious you can't do what you used to do, can't work effectively, won't ever get back to normal, that there'll be other issues down the line..... Having another bout of regular sleeplessness/anxiety/frustration/sleeplessness cycle. End up very frustrated! Always had occasional night of too many things rattling round in the head, but much more frequent over last 1-2 years. Cant decide whether Primary Hyperparathyroidism causes anxiety causes sleeplessness, or whether Primary Hyperparathyroidism causes sleeplessness causes anxiety etc etc. Doesnt really matter. End result is another night of sitting at the keyboard in the small hours as a means of trying to break that seemingly endless cycle... with inevitable consequences for the next and subsequent day's efforts. Blasted disease.

[Rach]

Im right there with ya Dave! In fact I was up half of last night not being able to sleep, anxious about many things...none of which are important. Ive been like this for a while, Im kinda hoping it is the Primary Hyperparathyroidism and it will go after surgery. If not, I need some kinda help! Hehe!